EDS Awareness
EDS Education
President and Program Director for Chronic Pain Partners non-profit 501(c)(3)
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Develops programs to Connect, Support and Educate those with Ehlers-Danlos Syndrome (EDS), their caregivers and the medical community.
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Since 2012 helped to start and/or support over 120 local EDS Support groups giving them coaching & free web pages
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Since 2013 produced over 90 live and recorded webinars covering 50+ EDS related educational topics
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In 2017 launched an online EDS Physician CME Educational program.
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Created and maintains an online store for those with Ehlers-Danlos Syndromes and similar conditions
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Sponsor and participant for the past 7 years at the EDS Annual International Learning Conferences
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Sponsor and participant in a variety of additional conferences, awareness walks and symposiums.
